Today, I did a lot of research and began filling out applications toward health insurance assistance through the state. My aunt got a lot of information from her co-workers that has been helpful and I went over to her apartment to have dinner and discuss my options. Over the next few days, I hope to have a timeframe where I will be able to talk to doctors and specialists.
I spoke with Marsha at the UCLA Center of Cerebral Palsy and she said that for the symptoms I am having it is more about my CP then about my tendon transfer surgery. She said that I would have to get a whole bunch of test to see where and why the pain is shooting up my leg. It sounds more like nerve endings. She also said that when someone becomes a patient of the Center that they all have to go through these preliminary tests, since CP affects each person differently and they always want to pinpoint exactly the place I am being most affected. It gave me a better sense of what I need to do and put me on a track to get better.
I find it fascinating, that I have never heard of UCLA's Center of Cerebral Palsy, but it is a leading center for the research and treatment of people with CP. I find it funny that I inadvertently move to a place with such a qualified facility close to my house. Things happen for a reason. It also happens that I have the family member who would know the most about CP and works with children with CP 20 minutes away. Like I said, it all happens for a reason. I have had many people tell me over the past 6 months, that they believe I was meant to move to California because of my Aunt Peggy, acting was just the excuse to get me there. I truly believe that now, as things unfold. I am very grateful that I am able to see that. My aunt calls me every other day to see how I am doing. She looks out for me and prods me to do things in that lovingly annoying motherly way. It is a relationship I never experienced with my mom. My mom gave me the skills to be independent and go with confidence into the world. My mom trusted that I would do what she said and use common sense. I am not used to having someone check up on me so frequently, it's nice.
Until tomorrow. Take care and be safe.
All my love,